Article detail · 2024
Caregivers of Children with Autism Spectrum Disorders: The Role of Guilt Sensitivity and Support
- Year
- 2024
- Type
- article
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- YÖKSİS YÖKSİS article record
- YÖKSİS venue Journal of Clinical Medicine
- Catalog match (ISSN) Journal of Clinical Medicine
- OpenAlex OpenAlex enrichment (abstract, citations, topics)
Abstract
OpenAlex · English
Background/Objectives: Burden Syndrome, also known as Caregiver Syndrome, particularly affects those who serve in the role of informal caregiver in the presence of family members with conditions. The ABCX dual model examines the impact on the caregiver of the diagnosis of autism spectrum disorder (ASD) on the family. This model considers the severity of the stressor (A), the additional demands of life stress (aA), the family’s internal resources (B), the family’s external resources (bB), the family’s assessment of the situation (C), coping strategies (cC), and outcome (X). The purpose of the present study is to investigate the relationships between resilience, guilt, and burden of care in caregivers of children with ASD. Methods: Various assessment instruments were used, including the “Caregiver Burden Inventory” to measure burden, the “Brief Resilience Scale” to assess resilience, the “Guilt Sensitivity Questionnaire” to examine guilt sensitivity, and the “DA.L.I.A.” to collect information on parent and child characteristics. A total of 80 parents/caregivers participated in the research, including 53 women (Age M = 41.72; SD = 7.8) and 27 men (Age M = 43.35; SD = 6.29). Results: The findings indicate that individuals’ resilience to stressful events correlates negatively with burden, a developmental subtype. However, guilt seems not to play a significant role in the overall perception of burden. In contrast, it was found that the use of informal supports is associated with higher levels of guilt and emotional burden, whereas the use of formal supports is correlated with higher emotional burden, but not higher perceptions of guilt. Conclusions: This study provides important information about the support needed by caregivers and suggests how to address emotional burdens to prevent burnout and support families with children with ASD.
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Citations
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27 citations
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4 publications in the local catalog that cite this work (OpenAlex reference match; not the full global list).
- Guilt in parents of children diagnosed with hemophilia: A qualitative study 2026
- Guilt in parents of children diagnosed with hemophilia: A qualitative study 2026
- Do psychological distress and child’s gender influence parental guilt in mothers of children with autism spectrum disorder and other neurodevelopmental disorders? A moderated mediation model 2025
- Do psychological distress and child’s gender influence parental guilt in mothers of children with autism spectrum disorder and other neurodevelopmental disorders? A moderated mediation model 2025